I highly recommend people to join as well. Thank you for doing this AMA!

To put this into perspective, there are about 800 million active users on Facebook, but only 9 million people on the bone marrow registry. How long were you registered before you were called? Don't forget to sign up: www.BeTheMatch.org, EDIT2: Thanks to Lyralou for pointing out that registries are desperately in need of donors of color. I donated marrow from my hip bone and "T cells" through peripheral apheresis.

Most of the time these days they can get those cells non-surgically through a nearly painless PBSC donation. KimberlyInOhio373 karma2013-09-17 14:04:34 UTC.

Tronosaurus2 karma2013-09-17 15:33:42 UTC. Apheresis isn’t perfect, so all of the blood in my body had to pass through the machine about four times to ensure enough PBSCs would be collected for the recipient.

Results of the Spanish Donor Registry, Splenic rupture in a parental donor undergoing peripheral blood progenitor cell mobilization, Directive 2004/23/EC of the European Parliament and Council on Setting Standards of Quality and Safety for the Donation, Procurement, Testing, Processing, Preservation, Storage and Distribution of Human Tissues and Cells, International Standards for Cellulartherapy Product Collection, Processing, and Administration, Spontaneous rupture of spleen during peripheral blood stem‐cell mobilization in a healthy donor, Differences between graft product and donor side effects following bone marrow or stem cell donation. http://i.imgur.com/[removed]. Principally whether the patterns of outcomes observed in the registry data are reflected in the RCTs and the extent to which confounding factors influence the registry data. It’s free (if you’re between the ages of 18 and 45), quick, painless, and you’ll probably never have to think about it again. Any discomfort of mine, however, likely paled in comparison to that of the recipient. I got a phone call late one night from someone at the registry. Please go to www.bethematch.org and sign up to donate.

I slept through most of the apheresis procedure.

Personal Communication, 2009). Wherever, and whoever, my recipient may be, I hope my immune system is serving him well. how long does it take? After exhausting a lot of other treatment options he got a transplant.

A few days of pain and discomfort is worth it to be able to save someone else's life. 9/11 Truther Mark Ruffalo Testifies to Congress on Science, Nothing Grimes Said About Eyeballs or Depression Makes Any Sense, Jeff Bezos' Plan to Colonize Space is Based on Sheer Nonsense, Robert F. Kennedy, Jr. is Helping Spread Flu and Cervical Cancer, Anti-Monsanto Lawyer and USRTK, Carey Gillam Collaborator Possibly Headed to Prison for Extortion, Journalist Peter Fairley Cites Anti-Vaxx Website, Spreads Misinformation on Flu, COVID-19, DeSmogBlog: Climate Website Is Headed by Anti-Vaxxer Brendan DeMelle, DeSmogBlog: Climate Activist Site Smears Freeman Dyson and Other Scientists.

Other minorities have even worse numbers. My PBSC donation story started in 2015 when I joined the Be The Match Registry.

I am also a match and have my physical exam coming up in the next couple weeks. Should You Worry About Artificial Flavors Or Colors? Right arm is immobilized, but the needle in my left is placed in a way that I can move it. Some minor bone pain in my hips, back and head for a few days -- no worse than the flu. Cord Blood Banking is Not Insurance for the Future, Bone Marrow Transplants - Without Chemotherapy Side Effects, Harvard's Christopher Gerry Photo: Research Gate, Why Americans Hate Big Pharma More Than Ever, Data Manipulation Scandal Rocks the World’s Most Expensive Drug, Genetically Modified People: Gene Editing Arrives in the Clinic, Metastasis: Cancer's Invasion of the Body, When Cancer Strikes Back: Fighting Drug Resistance, COVID: Trial Proves that Hydroxychloroquine Does Not Help Treat Coronavirus.

The surgical procedure is a bit scarier, but so worth it.

I'm so glad everyone on this thread is either already registered or seems positive about it. COVID: No, Coronavirus Wasn't Created in a Laboratory. On the fifth day, the donor visits the hospital to undergo apheresis, a procedure where they run your blood through a machine and remove stem cells.

Comments: 1264 • Responses: 41  • Date: 2013-09-17 13:58:08 UTCsource, Pots_And_Pans1290 karma2013-09-17 14:54:43 UTC. Data should then be compared with age‐ and sex‐matched normal (non‐donor) populations to evaluate whether adverse outcomes are a result of the donation experience or an expected outcome within the normal population group.

:D. A PBSC donation is not very painful. They'll send you cheek swabs in the mail. Sign up! This process separates materials of different densities into distinct layers by spinning them at very high speeds—a carnival ride called the Gravitron is essentially a human-sized centrifuge. I attended a local registration drive where volunteers took my contact information and swabbed the inside of my cheek a few times to get a high-level snapshot of what my HLA markers look like. It's called apheresis. No money. By the morning of the fifth day, I was very much ready to get rid of those blood stem cells that my bone marrow had worked so hard to produce.

To facilitate matchmaking, organizations like the National Marrow Donor Program curate lists of potential donors (like the Be The Match Registry) that doctors can check when their patient needs a blood stem cell transplant. This involves 5 days of injections to stimulate your bones to release stem cells into the bloodstream.

", EDIT: Do I look like I'm in pain?

(I'm typing with only my left hand so be patient.).

I actually work for an organization in Southern California that does recruitment in minority communities.

The Next Plague and How Science Will Stop It. If you're reluctant, be comforted by the fact that only about 1 in 540 of those who sign up actually end up donating, and about 80% of the time it's through a PBSC (peripheral blood stem cell) donation, which is non-invasive and relatively easy. Does it hurt ? Should you be redditing whilst giving marrow? HLA markers may be complicated on a molecular level, but joining the registry couldn’t have been simpler.

How long was the process when you were actually chosen? So much so that the word's meaning has eroded somewhat over time. A few weeks ago, a nurse took six gallons of blood out of my left arm; my body only holds about a gallon and a half of blood, so I wouldn’t be here if she had decided to keep it. While never serious, I experienced more intense symptoms after the third and fourth injections.

Sounds like a good deal to me. No payment. Donating PBSC simultaneously enrolls you in an ongoing clinical trial to assess long-term risks and benefits. At Harvard, Dr. Gerry contributed over 30 articles to the Science in the News blog, and he served as its Co-Editor-in-Chief from 2017-2019. I've heard bone marrow donation is painful as balls. and you may need to create a new Wiley Online Library account. each day to receive injections. I donated years ago and aside from some discomfort of having to sit in a chair for a number of hours, saving a life couldn't be easier.

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