It’s possible that some problems happen due to a misunderstanding and can be resolved by talking it through with your employer. I got more exercise in my garden, digging and planting, and gradually my confidence came back. Five weeks later I returned to DF/BWCC for the transplant. Without the potential safety net of sick pay or pension scheme, you may feel forced to return to work earlier than you should to provide an income. Learning I had a life-threatening disease and going through a transplant was the most difficult experience of my life. When looking for a new job, you don’t have to tell a new employer about your medical situation. They’ve been very understanding, especially with my relapse earlier this year.

Copyright 2020 Dana-Farber Cancer Institute 450 Brookline Avenue, Boston, MA 02215 Call us: 617-632-3000, Dana-Farber/Brigham and Women’s Cancer Center (DF/BWCC). It can be an important part of making you feel ‘normal’ again and a different focus away from the medical world. Yes. Ian, stem cell transplant recipient. If you are concerned about people’s expectations of you when you return, you could give them our Supporting your friend through a stem cell transplant guide. The first shock came in March 2012, when I e-mailed my doctor about some problems I’d been having for a couple of days – pain between my shoulder blades and difficulty swallowing. I wasn’t at that time physically robust enough. You may also be entitled to other benefits that are detailed in our finance section. I suffered from fatigue, too, so I could get very tired very quickly at short notice. Changing your duties if your job puts you at risk of infections. It’s not until three or four months later that you start to realise what happened to you and how serious it was. For example, could you work in an office rather than interacting directly with the public?

If you need some help doing this, you can get advice from Working Towards Wellbeing about how to do this. I really do. It can help to think through what your role involves and what you’re able to do as you start thinking about your return. Two days later, I was released from the hospital. You can speak to your transplant team about it too. I used to relish the buzz of being involved in big projects and working with different people across the city. I returned to DF/BWCC three times a week for follow-up tests to make sure I was recovering properly – visits which became less frequent as the weeks and months passed. Returning to work isn’t always straightforward. In today’s blog, Billie from the Patient Team spoke to three different people about their experiences returning to work: Ian, Jemma, and Brian. If you see the. Family is more important to me now, plus going out and trying new things.' Flexible working hours can also make appointments more manageable. If the problem is more serious, you might need the help of an independent body to mediate the situation. It usually takes about 2 to 6 weeks to start seeing a steady return to normal blood cell counts. I felt devastated, but Dr. Steensma and the nurses explained that my situation wasn’t unusual. If a Testicle Lump Is Painful, Is it Testicular Cancer? An hour after a bone marrow test showed that I had leukemia, I was in an ambulance bound for Brigham and Women’s, where I had more tests and, in a few days, a diagnosis of AML. Being at work and on my feet all day made that worse, and by Christmas that year I was beginning to wonder if I’d made the right choice to go back. Returning to work after a bone marrow or stem cell transplant can be a challenging time – and it varies for every patient. That’s not improved over time, sadly, so the fatigue is the hardest part to live with daily.

So when I couldn’t work any more, it really was a case of, ‘What am I going to do?’. The good news is that there is practical support and advice that can help. The earliest you can go back to school or work is 2 to 4 months from the time of your transplant.

Taking notes, making lists, using a diary, calendar or phone apps could help you keep track of tasks and make you feel more in control.

Keeping in touch with your employer and work colleagues will help you feel like you’re returning to your old routine. I’m exercising more than I ever used to. It’s never been a chore to go to work. Work is really so much more than being paid.' With the highs and lows of post-transplant life, it can be all too easy to slip into a routine of watching daytime TV and doing nothing. Family is more important to me now: and going out and trying new things, meeting new people, and having experiences. It's not the be-all and end-all anymore. But it was daunting to return to the real world after so long. You’re most likely to get one during the first 6 weeks. I got more exercise in my garden, digging and planting, Emotionally, I was a rudderless boat, though, all those practical elements that worry you when you are ill, November Update | Brian's New Cancer Journey, Cord blood: an under-utilised source of hematopoietic cells, ‘What going through a transplant means for your life, your wellbeing and your relationships’ – Nicola’s Story, ‘On this day, three years ago, a stranger saved my life’ – John’s story, ‘Recovering from blood cancer during Covid-19’ – Bethan’s story. The leukaemia came back, but it was growing outside the bone. Your return to work should move at your pace and be sustainable for you in the long term. I’d never want to go back to working full-time! At about this time, the doctors started telling me about a stem cell transplant. There were just certain things I didn’t feel up to, like driving by myself. Here are some examples of the support they may be able to offer you: Our Work & stem cell transplants: a guide for employers booklet has been produced to help employers understand your needs and how they can provide support. In this section we will look at the following: More information and advice is also available in our guide Work and finance: before, during and after a stem cell transplant.

Some things you could think about: ‘I'd never want to go back to working full-time! I now give non-clinical support to any Isle of Wight resident affected by cancer. You can also get advice from the team at Working Towards Wellbeing (see below for more information on this service). For several terrifying minutes, we didn’t know whether Ryan had been hurt, but we soon received a text from him. It’s important that the plans are flexible and can be adapted as you recover and get stronger. I also used it to speak to Befrienders for support, and eventually decided I’d like to become a volunteer. And emotionally, that would crucify me. Your employer should consider making ‘reasonable adjustments’ to your role to support you at work. Others pop into work and meet up with colleagues and friends. I was still very tired, as well. Following chemotherapy and conditioning therapy, I had my transplant in June 2012. Some people ask to have internal newsletters or updates about the workplace so that they can keep in touch with what’s going on. The most important thing for me was to get back to having a plan - to know that this week I have this meeting or I'm going to see this person.' I was feeling quite useless, really, as I’d had quite an active career until I got sick. In donating the stem cells from her bone marrow, she was essentially giving me a new immune system. The government offers Access to work grants to people with long term health conditions trying to get back to work.

I’ve had 11 immunizations so far to help my new immune system get up to speed. A small amount of my sister’s bone marrow was “harvested” – removed from her hip area – on June 28. It was about a year to 18 months. It felt strange not being part of everyday society, especially at the start of the school year, when everyone but me was going back to work. Charlie Rider had a stem cell transplant at Dana-Farber as young boy. Barely a minute after Ryan crossed the finish line, the area shook with explosions. I had a relapse earlier this year, unfortunately. You may feel ready to return right away, or you may … Would you benefit from learning some new skills? Not only for you, but for your family as well. People offered to do whatever they could to help and I received more than 400 cards while in the hospital.

I appreciate it is difficult in this environment; when you are often moving classrooms, it’s difficult to contain. For more information about the return to work, read The Way Back To Work – a report featuring more real-life stories from people who’ve been through a stem cell transplant. After the eight-day course of chemotherapy, a bone marrow biopsy showed that some leukemia remained. You know yourself and your job better than anyone, so think about what would make it easier.

Anthony Nolan is a registered charity no 803716/SC038827 and a registered company no 2379280. This could affect your financial and family situation, so take your time and discuss your thoughts with family and friends. I live on the Isle of White, so all my appointments were across the water in Southampton – quite a journey! Not only had he completed his first-ever marathon in four hours, but he was running, in large part, because of me. This job is rewarding, but I used to devote my whole life to it, and after being ill I see that there is more to life.

Work have been very supportive and have allowed me time off for hospital appointments. It took about 12 months. To give myself a routine to follow, I made sure to shower every day, difficult as it was to move, and walked around the hospital unit as much as I could. The main struggle for me has been my ability to concentrate on things.

The volunteering position helped me to fulfil that wish, and then to be paid to work at the centre fitted the bill perfectly. I couldn’t eat fresh fruit or vegetables, only cooked foods. A stem cell transplant gave Jemma the chance to rethink her priorities after returning to work.

So was my sister, Amy. It felt strange not being part of everyday society, especially at the start of the school year, when everyone but me was going back to work. You will be in the hospital for some of this time. About four months after my transplant, I was contacted about a project that London Underground was starting the following year. Ian, stem cell transplant recipient. Diagnosed with Multiple Myeloma in August 2010, she had a stem cell transplant in March 2011 and, as of September 2013, was on post-transplant maintenance bio-therapy at Dana-Farber/Brigham and Women’s Cancer Center. It was very difficult for me to be mobile, and I couldn’t go to busy train stations or on long journeys, which I would need to for my job. It’s important to do things at your own pace. Sitting around was really frustrating me, so I decided I wanted to try and go back to work. This can feel exciting, but also daunting, especially if you… Chemotherapy started within a week – an eight-day course of treatment delivered round-the-clock.

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